Center for Carcinoid and Neuroendocrine Tumors of Mount Sinai

Center for Carcinoid and Neuroendocrine Tumors of Mount Sinai Center for Carcinoid and Neuroendocrine Tumors of Mount Sinai

NET Facts

  • Over 90% of all carcinoid/ NETs are incorrectly diagnosed and treated for the wrong disease
  • From initial onset of symptoms the average time to proper diagnosis exceeds five years
  • More than 12,000 new cases of carcinoid/ NETs are diagnosed each year
  • Physicians are often not aware of current diagnostic and treatment options
  • Many physicians still believe that carcinoid tumors are benign, slow growing and do not metastasize disease are the two most common misdiagnosed conditions for patients with midgut carcinoid
  • Abdominal pain, flusing, diarrhea, wheezing, bloating, heart palpitation, weakness, skin rash, heartburn and weight changes are the most prevalent carcinoid/ NET symptoms
  • At least 125,000 people are living with carcinoid/NETs in the United States
Treatments

Surgical

Medical